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Overview

Defining requirements for an extensible patient registry for the leading nonprofit organization dedicated to autoimmune awareness, advocacy, education, and research.
Olivia Casey

Senior Director of Programs, Autoimmune Association

The Autoimmune Association was ready to graduate from a static patient registry to a sophisticated platform that would integrate surveys, communication via text and email, and dynamic data visualizations. In this discovery engagement, SoftServ collaborated with them to survey patients, interview partners, refine requirements, and ultimately create an RFP for a new registry platform. Our knowledge of associated technologies and the software development process helped set realistic criteria and timelines for the client.

Tags

Customer DiscoveryProduct RoadmappingUX Research

Requirements

Our Solution

Determine the preferences of potential users and how the platform can deliver value to them.

To build a good app, you need to build one that people will use. The Autoimmune Association recognized the need to know more about what their community values and how they prefer to engage with technology. SoftServ helped formulate a survey that went to thousands of users, providing essential feedback for project requirements.

Interview industry partners to understand a new system could improve collaboration.

It was equally important for the Autoimmune Association to develop a platform that would be an essential resource for community peers, like societies and clinical trial researchers. SoftServ team members conducted one-on-one interviews with multiple industry partners to ensure their perspective was considered in the development of a registry.

Craft final project requirements into a formal RFP for solicitation to potential software vendors.

In order for the Association to select a qualified vendor, they needed to be specific enough about requirements to receive multiple vendor proposals for comparative evaluation. SoftServ technical writers crafted an RFP, provided a list of qualified software vendors, and recommended a process and criteria for the Association to evaluate proposals.

Results

We helped the Autoimmune Association plan their application and set them up for a successful dev process.

Surveys with users and interviews with industry professionals provided important data beyond initial assumptions. SoftServ identified requirements that offered users information about their own disease, and the opportunity for the registry to become a valuable platform where they can track their own health journey.

For medical data to be useful, it needs to be frequently updated. SoftServ worked with user research results to determine what functionality would promote engagement and identify high priority requirements.

The Association knew that proactive engagement with patients was essential to keeping registry data current. SoftServ helped research the ways that various demographics prefer to interact with technology, building requirements about text messaging and email notifications into the RFP.

SoftServ collaborated with the Association to prioritize requirements that came from the results of our efforts and drafted an RFP for dissemination to potential vendors. We also researched and vetted vendors and provided a list of 20 viable service providers.
Define what functionality will deliver value
An app that will engage the community
Identify communication and marketing capabilities
endor research and RFP creation
Testimonials

Here's what people had to say about us.

Melissa Campbell
Melissa Campbell
Engaged Learning Tools Specialist, UC San Diego
SoftServ helped us navigate a big update to our student research opportunity portal, building in new features centered on student user experience. They took on the challenge and found solutions for all of our needs to support our diverse campus stakeholders.
Erik Johnson
Erik Johnson
CEO, CablingPlus
They have the knowledge, experience, and professionalism to ensure 100% success. They built us an enterprise level custom e-commerce website/platform that has been nothing but rock solid.
Andreas Kostopoulos
Andreas Kostopoulos
Archives Manager, American Research Center in Egypt
Thank you for all the great work you are doing at SoftServ! So pleased and proud to have worked with your team on developing our digital archives.
Rachel Howard
Rachel Howard
Digital Initiatives Librarian, University of Louisville Libraries
We appreciate the time SoftServ took with us, as well as their team’s expertise, guidance, and persistence. They made it possible for us to include multi-page documents, provide friendly URLs for items and collections, and limit the size of allowable downloads in our Hyku application.
Jill Morris & Kirsten Leonard
Jill Morris & Kirsten Leonard
Executive Directors, PALNI / PALCI
SoftServ has been key in helping us accomplish the ambitious goals of our grant-funded efforts to build a cost-effective multi-tenant Hyku repository to suit the needs of many diverse institutions. Their expertise, commitment to education and open source values, and contributions to the greater Hyku and Samvera community has been highly valued by our team and is what sets SoftServ apart.
Melissa Campbell
Melissa Campbell
Engaged Learning Tools Specialist, UC San Diego
SoftServ helped us navigate a big update to our student research opportunity portal, building in new features centered on student user experience. They took on the challenge and found solutions for all of our needs to support our diverse campus stakeholders.
Erik Johnson
Erik Johnson
CEO, CablingPlus
They have the knowledge, experience, and professionalism to ensure 100% success. They built us an enterprise level custom e-commerce website/platform that has been nothing but rock solid.
Andreas Kostopoulos
Andreas Kostopoulos
Archives Manager, American Research Center in Egypt
Thank you for all the great work you are doing at SoftServ! So pleased and proud to have worked with your team on developing our digital archives.
Rachel Howard
Rachel Howard
Digital Initiatives Librarian, University of Louisville Libraries
We appreciate the time SoftServ took with us, as well as their team’s expertise, guidance, and persistence. They made it possible for us to include multi-page documents, provide friendly URLs for items and collections, and limit the size of allowable downloads in our Hyku application.
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